Tuesday March 31, 2009
Today was another day. Jake is still trying to get some sleep. His steroids are being tapered off, and because so his white cell, and red blood cells are dropping. This was to be expected, but it is not to be worried about it because this is alright. They are still showing concern towards his liver. You only need 30% of your liver to live, but his doctor does not want to have to go the route of surgery by removing his liver because of the possible infection in other organs, or throughout the body. Tomorrow we will be having an ultrasound done on his liver to see if it shows any signs of an infection. If the ultrasound does not work then they will go to a cat-skan. Yet, if the cat-skan doesn't show anything either, then we will have to have a liver biopsy. They do not want to do the biopsy, but if it comes down to it then they will proceed. We hope for the best, and find what we are looking for soon.
Thursday, April 2, 2009
Day 20
Monday March 30, 2009
Today, was not the best day we had hoped for. Today we had found out that Jake's liver is shutting down. We are sad to know that he will not be able to depart for home tomorrow. We don't know why his liver is shutting down, but at the beginning of the transplant we knew if any organ was affected it would be the liver. The counts were not steady for about a week, and we were not told that it was bad. They are now showing concern because his counts are suppose to be between 0-40, and we are in the 300's and 700's. They have done some blood work, and a few things have came back negative, but that doesn't give us an answer to why this is happening. We hope that we find out, as soon as possible. It has been a very emotional week, and I apologize for anything that went wrong. Keep hanging in there Jake. You'll be home soon! I promise!
Today, was not the best day we had hoped for. Today we had found out that Jake's liver is shutting down. We are sad to know that he will not be able to depart for home tomorrow. We don't know why his liver is shutting down, but at the beginning of the transplant we knew if any organ was affected it would be the liver. The counts were not steady for about a week, and we were not told that it was bad. They are now showing concern because his counts are suppose to be between 0-40, and we are in the 300's and 700's. They have done some blood work, and a few things have came back negative, but that doesn't give us an answer to why this is happening. We hope that we find out, as soon as possible. It has been a very emotional week, and I apologize for anything that went wrong. Keep hanging in there Jake. You'll be home soon! I promise!
Day 19
Sunday March 28, 2009
Last day of the weekend. I hope everyone had a great weekend. Jake is himself once again. He seemed to have a great weekend. His counts were good once again. He is very excited to be able to go home. As we prepared for his arrival we had a long weekend. He is still not on very many meds, but he is still taking his oral medication. The nurses had said that he may be able to go home tomorrow, but for sure on Tuesday. We can't wait until he arrives home. We were also able to give some of the kids in the hallway some toys, which brought huge smiles to their faces. I also brought a cake, for thanks for the nursing staff because they have done so much for Jake, and me. I have built relationships with different nurses, which has helped me throughout this month of March. We are doing this for the better, and know that this is was the best thing for Jake's health.
Last day of the weekend. I hope everyone had a great weekend. Jake is himself once again. He seemed to have a great weekend. His counts were good once again. He is very excited to be able to go home. As we prepared for his arrival we had a long weekend. He is still not on very many meds, but he is still taking his oral medication. The nurses had said that he may be able to go home tomorrow, but for sure on Tuesday. We can't wait until he arrives home. We were also able to give some of the kids in the hallway some toys, which brought huge smiles to their faces. I also brought a cake, for thanks for the nursing staff because they have done so much for Jake, and me. I have built relationships with different nurses, which has helped me throughout this month of March. We are doing this for the better, and know that this is was the best thing for Jake's health.
Day 18
Saturday March 28, 2009
Today, not only was I busy, but also my mom and dad were. I would like to say special thanks to my parents, and all of our family friends who helped out this weekend. The house looks spectacular, and I owe all my thanks to you. Donna and Aaron thank you for the air filter. Thank you Margo and Tim for washing the comforters and cleaning the fridge, hehe. Thank you Ann and Bill for being there for me, and being there for my family. Jodster and Matt thank you for helping around the house, and making me smile Jodster. Thanks to all that have helped in some way. Jake's counts are great again, and we are only two days away from coming home. He ate out again, and has had a smile on his face. Keep smiling hun!
Today, not only was I busy, but also my mom and dad were. I would like to say special thanks to my parents, and all of our family friends who helped out this weekend. The house looks spectacular, and I owe all my thanks to you. Donna and Aaron thank you for the air filter. Thank you Margo and Tim for washing the comforters and cleaning the fridge, hehe. Thank you Ann and Bill for being there for me, and being there for my family. Jodster and Matt thank you for helping around the house, and making me smile Jodster. Thanks to all that have helped in some way. Jake's counts are great again, and we are only two days away from coming home. He ate out again, and has had a smile on his face. Keep smiling hun!
Day 17
Friday March 27, 2009
Busy, busy, weekend! This weekend I have a coaching clinic which will be hard to leave Jake throughout the day. I was able to come up at 9p.m. today. He was still wide awake, and we were able to watch movies. It's just like home except were in a hospital setting. His counts still look great, but he is still short on sleep. I really want him to get some sleep, but because of the steroids it is hard from him. All of his pumps are not being used, and he is off of his medication. He is taking all of his meds orally. As we go through the days we step one day closer to departure. Keep your head up high, Jacob! Continue the mission!
Busy, busy, weekend! This weekend I have a coaching clinic which will be hard to leave Jake throughout the day. I was able to come up at 9p.m. today. He was still wide awake, and we were able to watch movies. It's just like home except were in a hospital setting. His counts still look great, but he is still short on sleep. I really want him to get some sleep, but because of the steroids it is hard from him. All of his pumps are not being used, and he is off of his medication. He is taking all of his meds orally. As we go through the days we step one day closer to departure. Keep your head up high, Jacob! Continue the mission!
Day 16
Thursday March 26, 2009
Jake is once again Jake. He is looking much better and is eating a lot more! He is able to eat out which he loves. He is still on steroids, which causes him to not sleep. We are still there for him, and waiting for him to come home. He seems in better moods, and keeps his head held high! We all miss him, but we know he'll be home soon. His counts are great, but his sugar is a little high. It's probably from all that candy!
Jake is once again Jake. He is looking much better and is eating a lot more! He is able to eat out which he loves. He is still on steroids, which causes him to not sleep. We are still there for him, and waiting for him to come home. He seems in better moods, and keeps his head held high! We all miss him, but we know he'll be home soon. His counts are great, but his sugar is a little high. It's probably from all that candy!
Thursday, March 26, 2009
Day 15
Wednesday March 25, 2009
The BEST NEWS OF MY LIFE! Can it be real? Today I received the news that Jacob is coming home early next week! We plan on him coming home on the 31st of March! That is only 5 days away. I started crying in Spanish class knowing that my hubby is coming home. I was filled with so much joy. This has been a long journey, and knowing that it will be over soon is such a relief. His counts have been great, and he is eating by himself! He is starting to take his oral meds, and his pain medication has been lowered a lot. He is being weened off of the nebulizer and the air intake and output machine. He is back to himself and it is great to see that. Jacob also hasn't had a fever, and his mouth is healing so well. My mom and dad are attending a class tomorrow to learn about the care to prepare Jake for his return home. As a busy weekend approaches I know that it will go by fast putting Tuesday right around the corner. Hang in there Jake less than a week away!
The BEST NEWS OF MY LIFE! Can it be real? Today I received the news that Jacob is coming home early next week! We plan on him coming home on the 31st of March! That is only 5 days away. I started crying in Spanish class knowing that my hubby is coming home. I was filled with so much joy. This has been a long journey, and knowing that it will be over soon is such a relief. His counts have been great, and he is eating by himself! He is starting to take his oral meds, and his pain medication has been lowered a lot. He is being weened off of the nebulizer and the air intake and output machine. He is back to himself and it is great to see that. Jacob also hasn't had a fever, and his mouth is healing so well. My mom and dad are attending a class tomorrow to learn about the care to prepare Jake for his return home. As a busy weekend approaches I know that it will go by fast putting Tuesday right around the corner. Hang in there Jake less than a week away!
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