Tuesday March 31, 2009
Today was another day. Jake is still trying to get some sleep. His steroids are being tapered off, and because so his white cell, and red blood cells are dropping. This was to be expected, but it is not to be worried about it because this is alright. They are still showing concern towards his liver. You only need 30% of your liver to live, but his doctor does not want to have to go the route of surgery by removing his liver because of the possible infection in other organs, or throughout the body. Tomorrow we will be having an ultrasound done on his liver to see if it shows any signs of an infection. If the ultrasound does not work then they will go to a cat-skan. Yet, if the cat-skan doesn't show anything either, then we will have to have a liver biopsy. They do not want to do the biopsy, but if it comes down to it then they will proceed. We hope for the best, and find what we are looking for soon.
Thursday, April 2, 2009
Day 20
Monday March 30, 2009
Today, was not the best day we had hoped for. Today we had found out that Jake's liver is shutting down. We are sad to know that he will not be able to depart for home tomorrow. We don't know why his liver is shutting down, but at the beginning of the transplant we knew if any organ was affected it would be the liver. The counts were not steady for about a week, and we were not told that it was bad. They are now showing concern because his counts are suppose to be between 0-40, and we are in the 300's and 700's. They have done some blood work, and a few things have came back negative, but that doesn't give us an answer to why this is happening. We hope that we find out, as soon as possible. It has been a very emotional week, and I apologize for anything that went wrong. Keep hanging in there Jake. You'll be home soon! I promise!
Today, was not the best day we had hoped for. Today we had found out that Jake's liver is shutting down. We are sad to know that he will not be able to depart for home tomorrow. We don't know why his liver is shutting down, but at the beginning of the transplant we knew if any organ was affected it would be the liver. The counts were not steady for about a week, and we were not told that it was bad. They are now showing concern because his counts are suppose to be between 0-40, and we are in the 300's and 700's. They have done some blood work, and a few things have came back negative, but that doesn't give us an answer to why this is happening. We hope that we find out, as soon as possible. It has been a very emotional week, and I apologize for anything that went wrong. Keep hanging in there Jake. You'll be home soon! I promise!
Day 19
Sunday March 28, 2009
Last day of the weekend. I hope everyone had a great weekend. Jake is himself once again. He seemed to have a great weekend. His counts were good once again. He is very excited to be able to go home. As we prepared for his arrival we had a long weekend. He is still not on very many meds, but he is still taking his oral medication. The nurses had said that he may be able to go home tomorrow, but for sure on Tuesday. We can't wait until he arrives home. We were also able to give some of the kids in the hallway some toys, which brought huge smiles to their faces. I also brought a cake, for thanks for the nursing staff because they have done so much for Jake, and me. I have built relationships with different nurses, which has helped me throughout this month of March. We are doing this for the better, and know that this is was the best thing for Jake's health.
Last day of the weekend. I hope everyone had a great weekend. Jake is himself once again. He seemed to have a great weekend. His counts were good once again. He is very excited to be able to go home. As we prepared for his arrival we had a long weekend. He is still not on very many meds, but he is still taking his oral medication. The nurses had said that he may be able to go home tomorrow, but for sure on Tuesday. We can't wait until he arrives home. We were also able to give some of the kids in the hallway some toys, which brought huge smiles to their faces. I also brought a cake, for thanks for the nursing staff because they have done so much for Jake, and me. I have built relationships with different nurses, which has helped me throughout this month of March. We are doing this for the better, and know that this is was the best thing for Jake's health.
Day 18
Saturday March 28, 2009
Today, not only was I busy, but also my mom and dad were. I would like to say special thanks to my parents, and all of our family friends who helped out this weekend. The house looks spectacular, and I owe all my thanks to you. Donna and Aaron thank you for the air filter. Thank you Margo and Tim for washing the comforters and cleaning the fridge, hehe. Thank you Ann and Bill for being there for me, and being there for my family. Jodster and Matt thank you for helping around the house, and making me smile Jodster. Thanks to all that have helped in some way. Jake's counts are great again, and we are only two days away from coming home. He ate out again, and has had a smile on his face. Keep smiling hun!
Today, not only was I busy, but also my mom and dad were. I would like to say special thanks to my parents, and all of our family friends who helped out this weekend. The house looks spectacular, and I owe all my thanks to you. Donna and Aaron thank you for the air filter. Thank you Margo and Tim for washing the comforters and cleaning the fridge, hehe. Thank you Ann and Bill for being there for me, and being there for my family. Jodster and Matt thank you for helping around the house, and making me smile Jodster. Thanks to all that have helped in some way. Jake's counts are great again, and we are only two days away from coming home. He ate out again, and has had a smile on his face. Keep smiling hun!
Day 17
Friday March 27, 2009
Busy, busy, weekend! This weekend I have a coaching clinic which will be hard to leave Jake throughout the day. I was able to come up at 9p.m. today. He was still wide awake, and we were able to watch movies. It's just like home except were in a hospital setting. His counts still look great, but he is still short on sleep. I really want him to get some sleep, but because of the steroids it is hard from him. All of his pumps are not being used, and he is off of his medication. He is taking all of his meds orally. As we go through the days we step one day closer to departure. Keep your head up high, Jacob! Continue the mission!
Busy, busy, weekend! This weekend I have a coaching clinic which will be hard to leave Jake throughout the day. I was able to come up at 9p.m. today. He was still wide awake, and we were able to watch movies. It's just like home except were in a hospital setting. His counts still look great, but he is still short on sleep. I really want him to get some sleep, but because of the steroids it is hard from him. All of his pumps are not being used, and he is off of his medication. He is taking all of his meds orally. As we go through the days we step one day closer to departure. Keep your head up high, Jacob! Continue the mission!
Day 16
Thursday March 26, 2009
Jake is once again Jake. He is looking much better and is eating a lot more! He is able to eat out which he loves. He is still on steroids, which causes him to not sleep. We are still there for him, and waiting for him to come home. He seems in better moods, and keeps his head held high! We all miss him, but we know he'll be home soon. His counts are great, but his sugar is a little high. It's probably from all that candy!
Jake is once again Jake. He is looking much better and is eating a lot more! He is able to eat out which he loves. He is still on steroids, which causes him to not sleep. We are still there for him, and waiting for him to come home. He seems in better moods, and keeps his head held high! We all miss him, but we know he'll be home soon. His counts are great, but his sugar is a little high. It's probably from all that candy!
Thursday, March 26, 2009
Day 15
Wednesday March 25, 2009
The BEST NEWS OF MY LIFE! Can it be real? Today I received the news that Jacob is coming home early next week! We plan on him coming home on the 31st of March! That is only 5 days away. I started crying in Spanish class knowing that my hubby is coming home. I was filled with so much joy. This has been a long journey, and knowing that it will be over soon is such a relief. His counts have been great, and he is eating by himself! He is starting to take his oral meds, and his pain medication has been lowered a lot. He is being weened off of the nebulizer and the air intake and output machine. He is back to himself and it is great to see that. Jacob also hasn't had a fever, and his mouth is healing so well. My mom and dad are attending a class tomorrow to learn about the care to prepare Jake for his return home. As a busy weekend approaches I know that it will go by fast putting Tuesday right around the corner. Hang in there Jake less than a week away!
The BEST NEWS OF MY LIFE! Can it be real? Today I received the news that Jacob is coming home early next week! We plan on him coming home on the 31st of March! That is only 5 days away. I started crying in Spanish class knowing that my hubby is coming home. I was filled with so much joy. This has been a long journey, and knowing that it will be over soon is such a relief. His counts have been great, and he is eating by himself! He is starting to take his oral meds, and his pain medication has been lowered a lot. He is being weened off of the nebulizer and the air intake and output machine. He is back to himself and it is great to see that. Jacob also hasn't had a fever, and his mouth is healing so well. My mom and dad are attending a class tomorrow to learn about the care to prepare Jake for his return home. As a busy weekend approaches I know that it will go by fast putting Tuesday right around the corner. Hang in there Jake less than a week away!
Wednesday, March 25, 2009
Day 14
Tuesday March 24, 2009
Busy, busy, busy day for me! I was finally able to see Jake at 9pm. He is doing so much better I can't even believe it. His counts were great once again, but he is still on steroids. Hoping that the steroids will plateau out the counts evenly. His white blood cells were up to above 2. His red blood cells were at 3.9. His hemoglobin was at 11.4. He did not get any platelets because his count were at 32. He also has his neutrophls were at almost 1,000 being at 987. His lymphs were also at 777. He was taken off the pulse and oxygen monitors throughout the day, but had to use it the previous night. More of his hair is falling out on his head. Not only that, but he has to do his breathing intake and output three times a day. Just by blowing and taking in air through this plastic contraption. He also has to use a nebulizer three times a day for 20 minute periods. He ate today! I was so pleased when I heard that. He was able to a corn dog, and some lemon ice! He is much back to himself. I walked in and he was wide awake, and able to joke around like he usually does. Great job Jacob, hang in there!
Busy, busy, busy day for me! I was finally able to see Jake at 9pm. He is doing so much better I can't even believe it. His counts were great once again, but he is still on steroids. Hoping that the steroids will plateau out the counts evenly. His white blood cells were up to above 2. His red blood cells were at 3.9. His hemoglobin was at 11.4. He did not get any platelets because his count were at 32. He also has his neutrophls were at almost 1,000 being at 987. His lymphs were also at 777. He was taken off the pulse and oxygen monitors throughout the day, but had to use it the previous night. More of his hair is falling out on his head. Not only that, but he has to do his breathing intake and output three times a day. Just by blowing and taking in air through this plastic contraption. He also has to use a nebulizer three times a day for 20 minute periods. He ate today! I was so pleased when I heard that. He was able to a corn dog, and some lemon ice! He is much back to himself. I walked in and he was wide awake, and able to joke around like he usually does. Great job Jacob, hang in there!
Monday, March 23, 2009
Day 13
Monday March 23, 2009
What a wonderful day! Jake and I remember this day, the 23 as something special! :) Today my soccer practice was delayed so I was able to visit Jacob right after school. Today his white cell count is all the way at 1.6! That is incredible. His red blood cells only went back up to 3.2. Since he is having trouble breathing they are giving him two units of blood hoping that it will relieve the pain. His neutrophls were at 272 today which is amazing again! His counts are going up fast which are great, yet they started him on steroids today since they are going so fast. The believe that's why the rash may be happening the way it is. Also, his platelets were at 24 today so he didn't need any platelets. He is once again doing great. Many of you may know that I have a lot of clothes. I sufficiently cleaned my closet, and seriously only have half of my clothes left. My mom and brother were also able to clean part of the basement this weekend to help for Jacob's return. Tonight Alissa, his sister, will be spending the night with him. I can't wait until the day he comes home safe and sound. Along with many others!
What a wonderful day! Jake and I remember this day, the 23 as something special! :) Today my soccer practice was delayed so I was able to visit Jacob right after school. Today his white cell count is all the way at 1.6! That is incredible. His red blood cells only went back up to 3.2. Since he is having trouble breathing they are giving him two units of blood hoping that it will relieve the pain. His neutrophls were at 272 today which is amazing again! His counts are going up fast which are great, yet they started him on steroids today since they are going so fast. The believe that's why the rash may be happening the way it is. Also, his platelets were at 24 today so he didn't need any platelets. He is once again doing great. Many of you may know that I have a lot of clothes. I sufficiently cleaned my closet, and seriously only have half of my clothes left. My mom and brother were also able to clean part of the basement this weekend to help for Jacob's return. Tonight Alissa, his sister, will be spending the night with him. I can't wait until the day he comes home safe and sound. Along with many others!
Day 12
Sunday March 22, 2009
Long day for me! I had to leave Jacob at 11:30 this morning since I had to work. His white blood cells rose to .8. His red blood cells went down to 3.1. He did not need platelets since his count was at 27, which is great. When I left this morning my mom and dad were here. He had gotten sick as I left, and I felt horrible. His mouth is still getting better. As I watch him as days progress he seems to be more alert, and happier. (well that is happy as he can tolerate the pain). His neutrophls were only at 16. The doctors decided to schedule Lasix so that he can relieve some extra pain from fluids in his lungs. He now gets Lasix at 10am and 6pm. This will hopefully raise his outs of urine. As I see him progress he has lost some weight, and his hair still seems to fall out. His hair on his head and face is really only the place that is falling out. It tends to itch as it falls out. He was also put on oxygen and a pulse ox throughout the night to make sure there were no complications since he has been having trouble breathing. As I woke Monday morning I didn't receive a phone call for complications which concludes a great evening. Keep continuing the mission.
Long day for me! I had to leave Jacob at 11:30 this morning since I had to work. His white blood cells rose to .8. His red blood cells went down to 3.1. He did not need platelets since his count was at 27, which is great. When I left this morning my mom and dad were here. He had gotten sick as I left, and I felt horrible. His mouth is still getting better. As I watch him as days progress he seems to be more alert, and happier. (well that is happy as he can tolerate the pain). His neutrophls were only at 16. The doctors decided to schedule Lasix so that he can relieve some extra pain from fluids in his lungs. He now gets Lasix at 10am and 6pm. This will hopefully raise his outs of urine. As I see him progress he has lost some weight, and his hair still seems to fall out. His hair on his head and face is really only the place that is falling out. It tends to itch as it falls out. He was also put on oxygen and a pulse ox throughout the night to make sure there were no complications since he has been having trouble breathing. As I woke Monday morning I didn't receive a phone call for complications which concludes a great evening. Keep continuing the mission.
Day 11
Saturday March 21, 2009
Sleep. Again that is what Jake needs. Today my dad was able to come up here this morning. Also, Niki and Kelly were able to stop up here with his mom and sisters. He had been doing good with counts. His white blood cells are up to .4. His red blood cells were up to 3.2. Today he got more platelets since they were only at 17. His mouth sores are getting so much better, and he sounds like himself a little more. His rash was getting worse. It is a red bumpy circles on the surface of his skin. He has them on his legs and his arms. He is doing better, but still on the iv feeding. He looks much better then he did a week ago! Keep pulling strong Jacob!
Sleep. Again that is what Jake needs. Today my dad was able to come up here this morning. Also, Niki and Kelly were able to stop up here with his mom and sisters. He had been doing good with counts. His white blood cells are up to .4. His red blood cells were up to 3.2. Today he got more platelets since they were only at 17. His mouth sores are getting so much better, and he sounds like himself a little more. His rash was getting worse. It is a red bumpy circles on the surface of his skin. He has them on his legs and his arms. He is doing better, but still on the iv feeding. He looks much better then he did a week ago! Keep pulling strong Jacob!
Saturday, March 21, 2009
Love
Love. It's a special feeling. You feel it in every touch, every kiss, and every look. You get that tingly feeling every time you see one another, and you feel as if you fall in love all over again. There's always a special connection. You may disagree with each other yet agree on everything else, but that's what relationships are all about. It's about being able to be yourself and accept your partner and love them for who they are. Silence is okay from time to time knowing you don't need to speak every minute of the day to show each other you love one another. When love is true you can get through anything and you know that time won't be like this for long. As you go on you will be friends forever and always be there for each other. Live like there's no tomorrow, dance like there's nobody watching, and always tell the one how you feel. Make sure your partner knows you love them and always will. Tell the one you love just what you thinking of. Love is full of those big smiles, wet tears, joyous happenings, and the anger. Yet some are fun and yet others are not. Passion is always engaged. Love always has that feeling of rush, and yet the slow down of comfort. Love is love. Life is life. It takes life to love life. The feeling of love is the greatest feeling of happiness. I am glad I get to experience this feeling with you Jacob. As I dedicate this to you, I want you to know I have enjoyed every step of the way with you.
From the beginning I knew there was something between us. I just always want you to know that I love you with all of my heart. Your everything and more than I had ever hoped for. I am trying to do what I can for you. This journey we are going through is tough, but you teaching me to be strong has made it a little bit easier. I have learned to keep my head held high and to push forward. I owe this all to you, and thank you with all of my heart. Jake, I just want you to know that I am here for you when your falling, I am here for your support, I am here because I want to be, I am here because I love you! I am happy as can because I know that I will be able to be here for you for the rest of my life.
I love you Jacob,
Forever & Ever.
Day 10
Friday March 20, 2009
Rough and bumpy ride this journey is. I have learned to hold on tight to Jake, and continue the mission. Today Jake's platelets are at 27 which is great. His red cell count is the same, but his white blood cells went up by .1; so we are up to .2. As we keep going up we hope for a study and constant speed. My mom was able to come and visit Jake for a while as we went to visit my grandmother; who was having surgery. Jake and I called it an early night, and tryed to get some shut eye. I help when needed, and do what I can for Jake. I missed him terribly and it was great to be able to sit with him through the night. Tomorrow is another day, and we keep pushing forward. Keep in thoughts and prayers.
Rough and bumpy ride this journey is. I have learned to hold on tight to Jake, and continue the mission. Today Jake's platelets are at 27 which is great. His red cell count is the same, but his white blood cells went up by .1; so we are up to .2. As we keep going up we hope for a study and constant speed. My mom was able to come and visit Jake for a while as we went to visit my grandmother; who was having surgery. Jake and I called it an early night, and tryed to get some shut eye. I help when needed, and do what I can for Jake. I missed him terribly and it was great to be able to sit with him through the night. Tomorrow is another day, and we keep pushing forward. Keep in thoughts and prayers.
Day 9
Thursday March 19, 2009
And up we go! Jake's white cell count had reached 0 and today they were back up to .1. So all we do now is sit and wait. I was able to join Jake after soccer practice, and he slept. That is what he needs, and I was here to watch him. His red cell count is at 3.1 and we are also waiting for those to go back up. His platelet count is at 12 so he is having platelet transfusions. He had some bloody noses, but the platelets should help with that. He is doing good. Hanging in there. Which is all he can do. I miss his smile and his warmth, but I know I will have that again soon. Keep in thoughts.
And up we go! Jake's white cell count had reached 0 and today they were back up to .1. So all we do now is sit and wait. I was able to join Jake after soccer practice, and he slept. That is what he needs, and I was here to watch him. His red cell count is at 3.1 and we are also waiting for those to go back up. His platelet count is at 12 so he is having platelet transfusions. He had some bloody noses, but the platelets should help with that. He is doing good. Hanging in there. Which is all he can do. I miss his smile and his warmth, but I know I will have that again soon. Keep in thoughts.
Wednesday, March 18, 2009
Day 8
Wednesday March 18, 2009
Sleep. That's what Jake needs. Last night my brother spent the night, and the nurses said they haven't seen him get that much continuous sleep. Jake got about 14 hours of sleep which is great. I got a text message during the school day from Jake, saying call me asap. He wanted to talk to me since I hadn't seen him for a day, and he was in so much pain. I felt so bad since I had to call it a short conversation because of school. As I sit here typing, Jake is peacefully sleeping. Not knowing I am here I just sit, and clean his room. My brother, Jon, was able to bring him a new computer game for his laptop. I was also able to bring him new shorts and a new xbox game. Morphine is no longer being the medicine to cure his pain. He is now on Fentanyl. I talked to Jim, his dad, on the phone today and he said that it seems to be working better which is great. Today they put in a bed extender for the tiny bed he sleeps in. Hopefull that will make Jake a little more comfortable. Alissa is going to spend the night again with Jake. I was so thrilled to be able to be here tonight; even though it was just for a couple of hours. As we go on, we hold on strong, and pray until the end. Sleep tight and sweet dreams Jacob!
Sleep. That's what Jake needs. Last night my brother spent the night, and the nurses said they haven't seen him get that much continuous sleep. Jake got about 14 hours of sleep which is great. I got a text message during the school day from Jake, saying call me asap. He wanted to talk to me since I hadn't seen him for a day, and he was in so much pain. I felt so bad since I had to call it a short conversation because of school. As I sit here typing, Jake is peacefully sleeping. Not knowing I am here I just sit, and clean his room. My brother, Jon, was able to bring him a new computer game for his laptop. I was also able to bring him new shorts and a new xbox game. Morphine is no longer being the medicine to cure his pain. He is now on Fentanyl. I talked to Jim, his dad, on the phone today and he said that it seems to be working better which is great. Today they put in a bed extender for the tiny bed he sleeps in. Hopefull that will make Jake a little more comfortable. Alissa is going to spend the night again with Jake. I was so thrilled to be able to be here tonight; even though it was just for a couple of hours. As we go on, we hold on strong, and pray until the end. Sleep tight and sweet dreams Jacob!
Day 7
Tuesday March 17, 2009
Today was not only hard on Jake, but also on me. Today believe it or not was the first day I was not able to be at the hospital since the start of his transplant. I had soccer practice and work. My brother was happy to be able to spend the night up there, and it also made Jake a little more comfortable to have someone there over night. Today his mom and sister were there at some point throughout the day. Jake is incredible to go through this. Yet, I am his standing wall, and helping rock, I definitely don't have to go through the physical pain he has to. His mouth is starting to sluff, and the sores are all the way down his tract. He's had some changes in medications. Also, he his being tested for infections. He did have a fever, but I was told it was starting to drop. We all hope this fever and the infection comes back negative. It will get him closer to a speedy and safe recovery. We love you Jake! Hang in there!
Today was not only hard on Jake, but also on me. Today believe it or not was the first day I was not able to be at the hospital since the start of his transplant. I had soccer practice and work. My brother was happy to be able to spend the night up there, and it also made Jake a little more comfortable to have someone there over night. Today his mom and sister were there at some point throughout the day. Jake is incredible to go through this. Yet, I am his standing wall, and helping rock, I definitely don't have to go through the physical pain he has to. His mouth is starting to sluff, and the sores are all the way down his tract. He's had some changes in medications. Also, he his being tested for infections. He did have a fever, but I was told it was starting to drop. We all hope this fever and the infection comes back negative. It will get him closer to a speedy and safe recovery. We love you Jake! Hang in there!
Tuesday, March 17, 2009
Day 6
Monday March 16, 2009
Morphine does a body well. Jake was not feeling well at all so they increased his morphine to 10mg/h. I had my first day of soccer practice today so I wasn't able to go up as early as I wished. Jake had been feeling very nauseous and in a lot of pain throughout the day. He was getting very lonely and that made me wish I was there all of the time. I just want Jacob to know that I try to be there as much as I can because I love him so very much. It breaks my heart when I am not able to be by his side. Jake is still on nutrition but, he can still eat if he'd like. When my brother and I got to the hospital his sister Alissa was there. She was going to be spending the night again tonight. When we saw Jake he ended up getting sick and it was not pleasant for his throat. He also had another unpleasant experience of getting another catheter. The one that was in was not working as well as it should have so they took it out and placed in another one. He was tough and soon then Jon and I had to head home. I lay at night and just wait for the day that my baby will be home, and miss him every minute. Keep in prayers for a fast and safe recovery.
Morphine does a body well. Jake was not feeling well at all so they increased his morphine to 10mg/h. I had my first day of soccer practice today so I wasn't able to go up as early as I wished. Jake had been feeling very nauseous and in a lot of pain throughout the day. He was getting very lonely and that made me wish I was there all of the time. I just want Jacob to know that I try to be there as much as I can because I love him so very much. It breaks my heart when I am not able to be by his side. Jake is still on nutrition but, he can still eat if he'd like. When my brother and I got to the hospital his sister Alissa was there. She was going to be spending the night again tonight. When we saw Jake he ended up getting sick and it was not pleasant for his throat. He also had another unpleasant experience of getting another catheter. The one that was in was not working as well as it should have so they took it out and placed in another one. He was tough and soon then Jon and I had to head home. I lay at night and just wait for the day that my baby will be home, and miss him every minute. Keep in prayers for a fast and safe recovery.
Sunday, March 15, 2009
Day 5
Sunday March 15, 2009
Home is where the heart is. When we woke this morning Jake was in so much pain, and was saying he wanted to go home. We all want him to come home but, we know that there are more weeks to push through. We sit here and comfort him as much as we can. Like the previous day before Jake was having a hard time urinating so they decided to do a bladder scanner. Sure enough he was holding in all of his fluids, so they decided to insert a catheter. As I sat through the procedure with him it was very painful for him but, he pulled through. After he had gotten use to the feeling the pressure started to release. They had lowered his morphine on Saturday night, and that was not going well this morning. So the doctors decided to gradually increase it. We believe we have found a happy medium at 8. That's 8 mg/h. Today he had played on his new laptop and was joined by his buddy Jon, my brother. Jon was excited to see Jake and can't wait to come again tomorrow. Jim and Julie unfortunately had to fly home today, and as days go on as Jake progress's they will come back. Tonight Alissa, Jake's sister plans to stay over night since I have to head home. Tonight they plan on putting Jake on full nutirition bags since he is not able to eat. Were all hanging in there for Jake, especially me! Love you all, and keep in thoughts. Hope everyone had a great weekend! I love you, Jake!
Home is where the heart is. When we woke this morning Jake was in so much pain, and was saying he wanted to go home. We all want him to come home but, we know that there are more weeks to push through. We sit here and comfort him as much as we can. Like the previous day before Jake was having a hard time urinating so they decided to do a bladder scanner. Sure enough he was holding in all of his fluids, so they decided to insert a catheter. As I sat through the procedure with him it was very painful for him but, he pulled through. After he had gotten use to the feeling the pressure started to release. They had lowered his morphine on Saturday night, and that was not going well this morning. So the doctors decided to gradually increase it. We believe we have found a happy medium at 8. That's 8 mg/h. Today he had played on his new laptop and was joined by his buddy Jon, my brother. Jon was excited to see Jake and can't wait to come again tomorrow. Jim and Julie unfortunately had to fly home today, and as days go on as Jake progress's they will come back. Tonight Alissa, Jake's sister plans to stay over night since I have to head home. Tonight they plan on putting Jake on full nutirition bags since he is not able to eat. Were all hanging in there for Jake, especially me! Love you all, and keep in thoughts. Hope everyone had a great weekend! I love you, Jake!
Day 4
Saturday March 14, 2009
Boy what a day. Jake's morphine was pushed up more once again. He was not doing so hot but, he slept all day which he needed. He did not get an upset tummy very much so that was some what of a relief. I layed by his side all day hoping things would make him feel somewhat better. I know as things progress on its going to get worse, but we know that everything will be okay. We just got to keep our heads held high and keep pushing on. His dad was able to run out and get him his new laptop. Pretty nice if I have to say, and he seemed to be entertained by that while I was at work. I unfortunately had to work at night from 5-10 so having to leave his side always breaks my heart. I had gotten a text from him at about 8 and said he was very sick, and that he had called his dad. Jim and Julie were here until I was able to get here after work. His stomach did become upset, and his morphine was raised very high. He was also having a hard time going to the bathroom so they gave him medicine to try to help, and that just made things worse. Throughout the night they kept him on a monitor since it was such a high dose of morphine, and ended up putting him on oxygen. I stayed by his side throughout the night never letting go. I hope he knows that I am here for him all that I can be, and being the strongest I am. We love you Jake!
Boy what a day. Jake's morphine was pushed up more once again. He was not doing so hot but, he slept all day which he needed. He did not get an upset tummy very much so that was some what of a relief. I layed by his side all day hoping things would make him feel somewhat better. I know as things progress on its going to get worse, but we know that everything will be okay. We just got to keep our heads held high and keep pushing on. His dad was able to run out and get him his new laptop. Pretty nice if I have to say, and he seemed to be entertained by that while I was at work. I unfortunately had to work at night from 5-10 so having to leave his side always breaks my heart. I had gotten a text from him at about 8 and said he was very sick, and that he had called his dad. Jim and Julie were here until I was able to get here after work. His stomach did become upset, and his morphine was raised very high. He was also having a hard time going to the bathroom so they gave him medicine to try to help, and that just made things worse. Throughout the night they kept him on a monitor since it was such a high dose of morphine, and ended up putting him on oxygen. I stayed by his side throughout the night never letting go. I hope he knows that I am here for him all that I can be, and being the strongest I am. We love you Jake!
Day 3
Friday March 13, 2009
Down we go! Jake had some mouth sores starting to show. They were getting more and more noticeable throughout the day. He had been started on some Morphine to help the pain. By the end of the night he was able to feel the sores starting down his tract. As we wait for his counts to bottom out he hangs in there. His time consists of watching movies, playing video games, and sleeping. The more sleep he gets, the better! He had gotten sick again today which made his throat hurt even more. His dad was able to bring him some candy to sooth his throat. My parents met Jim and Julie and they got along great. As the days went on I was able to open up more to Jim and Julie and seemed to go a lot smoother. Jake got a lot of rest throughout the day and in through the morning. Sweet dreams everyone!
Down we go! Jake had some mouth sores starting to show. They were getting more and more noticeable throughout the day. He had been started on some Morphine to help the pain. By the end of the night he was able to feel the sores starting down his tract. As we wait for his counts to bottom out he hangs in there. His time consists of watching movies, playing video games, and sleeping. The more sleep he gets, the better! He had gotten sick again today which made his throat hurt even more. His dad was able to bring him some candy to sooth his throat. My parents met Jim and Julie and they got along great. As the days went on I was able to open up more to Jim and Julie and seemed to go a lot smoother. Jake got a lot of rest throughout the day and in through the morning. Sweet dreams everyone!
Day 2
Thursday March 12, 2009
Wow! Jake looked the best ever today. You wouldn't think that everything was going to go down hill considering this day. It was very surprising. Today he was joined by many people even including my mom and her friend Ann. He was able to get out in the hallway today and walked around. He was all smiles being consumed by his video game. After today we will start to notice different changes that go on. We now just sit and wait til his counts bottom out and then wait for his new stem cells to grow. Keep in thoughts and prayers!
Wow! Jake looked the best ever today. You wouldn't think that everything was going to go down hill considering this day. It was very surprising. Today he was joined by many people even including my mom and her friend Ann. He was able to get out in the hallway today and walked around. He was all smiles being consumed by his video game. After today we will start to notice different changes that go on. We now just sit and wait til his counts bottom out and then wait for his new stem cells to grow. Keep in thoughts and prayers!
Thursday, March 12, 2009
Day 1
Wednesday March 11, 2009
Today was the day, the start to a new beginning. Jake received his bone marrow today at 11:30. It was an hour process, and he came a to be stinky haha. He smelt like watermelon and some other odors mixed together. This is because of the new stem cells. Kinda weird ahy? He felt great today. Oh and he got out of his room! It was great for him to get out, even though he can't leave this hallway he still gets to step outside of his isolation. He ate a few different items of food, but late at night that was a different story. He keeps having an open mind and we hope for a fast and safe recovery. His mom, dad, step mom, and I all joined him throughout this day. I always have a smile on knowing that it is going to get better, and soon Jake will be home again! Keep in thoughts and prayers. Love you all!
Today was the day, the start to a new beginning. Jake received his bone marrow today at 11:30. It was an hour process, and he came a to be stinky haha. He smelt like watermelon and some other odors mixed together. This is because of the new stem cells. Kinda weird ahy? He felt great today. Oh and he got out of his room! It was great for him to get out, even though he can't leave this hallway he still gets to step outside of his isolation. He ate a few different items of food, but late at night that was a different story. He keeps having an open mind and we hope for a fast and safe recovery. His mom, dad, step mom, and I all joined him throughout this day. I always have a smile on knowing that it is going to get better, and soon Jake will be home again! Keep in thoughts and prayers. Love you all!
Wednesday, March 11, 2009
Day -1
Tuesday March 10, 2009
Rest, rest, rest! Today was Jacob's day of rest and boy did he look better. His counts still haven't dropped which we are waiting for. He once again got sick at night and had a few hallucinations but, other than that he looked great today. He did not have chemo today. He was still on IV fluids, and the mask and gown precautions got taken down today. That was great news. Today I met Jim and Julie, his dad and step mom. They were sweet as can be. His sisters Alissa and Meg came to visit him also tonight. It was a yucky day outside but, inside his room seemed a little bit brighter. His grandma and her daughter came to visit today for a few minutes. Jake had another early night and got sick in the late evening. He keeps having a great outlook on this process, but yet misses being home. From all his support from friends and family he is doing great! Keep your head up, Jake!
Rest, rest, rest! Today was Jacob's day of rest and boy did he look better. His counts still haven't dropped which we are waiting for. He once again got sick at night and had a few hallucinations but, other than that he looked great today. He did not have chemo today. He was still on IV fluids, and the mask and gown precautions got taken down today. That was great news. Today I met Jim and Julie, his dad and step mom. They were sweet as can be. His sisters Alissa and Meg came to visit him also tonight. It was a yucky day outside but, inside his room seemed a little bit brighter. His grandma and her daughter came to visit today for a few minutes. Jake had another early night and got sick in the late evening. He keeps having a great outlook on this process, but yet misses being home. From all his support from friends and family he is doing great! Keep your head up, Jake!
Monday, March 9, 2009
Day -2
Monday March 9, 2009
A full smile was brought to me today by Jake. He was in a brighter mood this evening. Today was the last day of chemo. It was again cyclophosphamide. He was on more fluids to keep him peeing, but he was still getting dehydrated so they sped up the fluids. He was sick this morning when his mom and sister were here, but when I got here he ate pizza rolls that he was able to keep down. He also was able to keep down some cookies I went on a mission for him to eat. I always was sweet enough to go get Jake a game he had ordered off the phone at Best Buy. It is called Saints Row 2. Today he seemed in a much peppier mood which I was very happy to see. His dad, Jim and his wife, Julie flew in today and plan on coming here before the night is over. It seems to me he has been better today, healthy wise and mentally wise. Earlier today he had some hallucinations but that is to be said once again from the drugs. I want everyone to know how strong Jake is. Going through this has showed me so much, that he still has proven to me how strong he is, and how much more of his life he wants to live. He seems to have a great outlook on this process, and that's exactly what he needs. With the support of his family and friends he is hanging on tight. Keep being strong Jacob. We love you!
A full smile was brought to me today by Jake. He was in a brighter mood this evening. Today was the last day of chemo. It was again cyclophosphamide. He was on more fluids to keep him peeing, but he was still getting dehydrated so they sped up the fluids. He was sick this morning when his mom and sister were here, but when I got here he ate pizza rolls that he was able to keep down. He also was able to keep down some cookies I went on a mission for him to eat. I always was sweet enough to go get Jake a game he had ordered off the phone at Best Buy. It is called Saints Row 2. Today he seemed in a much peppier mood which I was very happy to see. His dad, Jim and his wife, Julie flew in today and plan on coming here before the night is over. It seems to me he has been better today, healthy wise and mentally wise. Earlier today he had some hallucinations but that is to be said once again from the drugs. I want everyone to know how strong Jake is. Going through this has showed me so much, that he still has proven to me how strong he is, and how much more of his life he wants to live. He seems to have a great outlook on this process, and that's exactly what he needs. With the support of his family and friends he is hanging on tight. Keep being strong Jacob. We love you!
Day -3
Sunday March 8, 2009
Today was another day of an upset tummy. Jake was in pain all day from nausea and drowsiness. He had been puking all day. On a better note I was still here with him making sure he was safe and comfortable as best he could be. His mom joined late in the afternoon along with my parents shortly after. It was a yucky day all around, having to cut our stay shorter because of the weather. He was still seeing things which was another side affect from the drugs he is on. Today he had his first day of the new chemo. It is called cyclophosphamide. He will get that today and tomorrow once a day. It is spread only over one hour, but he is on mesna which is ran over 24 hours. That helps protect the lining in his bladder. Having so they make him urinate every 2 hours. Its a pain to him, but at least we know that his bladder and other body parts are still working well. All visitors must still fully gown and wear a mask, but its better for his sake. We hope your all doing well. It'll be back to old routine before we know it!
Today was another day of an upset tummy. Jake was in pain all day from nausea and drowsiness. He had been puking all day. On a better note I was still here with him making sure he was safe and comfortable as best he could be. His mom joined late in the afternoon along with my parents shortly after. It was a yucky day all around, having to cut our stay shorter because of the weather. He was still seeing things which was another side affect from the drugs he is on. Today he had his first day of the new chemo. It is called cyclophosphamide. He will get that today and tomorrow once a day. It is spread only over one hour, but he is on mesna which is ran over 24 hours. That helps protect the lining in his bladder. Having so they make him urinate every 2 hours. Its a pain to him, but at least we know that his bladder and other body parts are still working well. All visitors must still fully gown and wear a mask, but its better for his sake. We hope your all doing well. It'll be back to old routine before we know it!
Saturday, March 7, 2009
Day -4
Saturday March 7, 2009
Another rough ride today. We awoke at about 9am and Jake did not get a very good night sleep. He had his last day of Busulfan today every 6 hours. He took two showers and tryed to keep food down, but wasn't able to. He had lost some blood from a heavy nose bleed, but that was able to be clotted up. Today my mom and dad both visited around the lunch hour and shortly after his mother came in. At night Max and Ang came to visit Jake and watched a movie. It was another long day of resting. His doctor came this morning to tell us about his Influenza. It was about 2 days already in and they said to keep chuggin' on the transplant so to speak. His doctor had talked to other M.D.s and they agreed to keep on going since it is so early in the transplant. His glucose was high again today. Not much else today, it was a big day of resting. Continue to keep in thoughts and prayers, Jacob Lynch.
Another rough ride today. We awoke at about 9am and Jake did not get a very good night sleep. He had his last day of Busulfan today every 6 hours. He took two showers and tryed to keep food down, but wasn't able to. He had lost some blood from a heavy nose bleed, but that was able to be clotted up. Today my mom and dad both visited around the lunch hour and shortly after his mother came in. At night Max and Ang came to visit Jake and watched a movie. It was another long day of resting. His doctor came this morning to tell us about his Influenza. It was about 2 days already in and they said to keep chuggin' on the transplant so to speak. His doctor had talked to other M.D.s and they agreed to keep on going since it is so early in the transplant. His glucose was high again today. Not much else today, it was a big day of resting. Continue to keep in thoughts and prayers, Jacob Lynch.
Day -5
Friday March 6, 2009
Today was a rough day. I received a phone call from Jake and school and Jake told me he was diagnosed with slight depression by his pyschatrist Joel Wish. He says its from the side effects of the drugs he is on. He is also diagnosed with Influenza B. In doing so every visitor must wear a mask, gown, and optional gloves. Today his mom was here and I joined her after school at about 4. My mom and dad visited at about 5. Jake was not feeling well and could not keep much down today. He also started getting a sore throat from his influenza. Shelli a family friend joined at 9p.m. Katie was his R.N. and his N.A. was Linda. They did everything they could to try and cheer him up. He woke up late at night and played some video games and then went to bed at 11. He was able to keep his supper down through the night, but still didn't sleep the best. Since he can't remember much I made him a calendar to keep on track of what happens as the days go on. He layed in bed and I rubbed his head as he fell asleep. Sweet Dreams. Everyone have a great night!
Today was a rough day. I received a phone call from Jake and school and Jake told me he was diagnosed with slight depression by his pyschatrist Joel Wish. He says its from the side effects of the drugs he is on. He is also diagnosed with Influenza B. In doing so every visitor must wear a mask, gown, and optional gloves. Today his mom was here and I joined her after school at about 4. My mom and dad visited at about 5. Jake was not feeling well and could not keep much down today. He also started getting a sore throat from his influenza. Shelli a family friend joined at 9p.m. Katie was his R.N. and his N.A. was Linda. They did everything they could to try and cheer him up. He woke up late at night and played some video games and then went to bed at 11. He was able to keep his supper down through the night, but still didn't sleep the best. Since he can't remember much I made him a calendar to keep on track of what happens as the days go on. He layed in bed and I rubbed his head as he fell asleep. Sweet Dreams. Everyone have a great night!
Thursday, March 5, 2009
Day -6
Thursday March 5, 2009
Thursday, the 3rd day. Were continuing the mission. There was once again Busulfan every 6 hours. He was a little peppier when I got here today. When my mom and I got here we joined his mom, sisters, and aunt. After he got another dose of his medicine, he was out. Today his Hemoglobin and Hematocrit were low by one. His chloride and glucose were high today. Also his calcium was low by only by .3. Other then that his counts are looking great. He is sleeping still. He had some lunch at about 2p.m. He was seen by his psychatrist again today, and I heard it went really well. Child life also came in and gave Jake a nice pillow and a note pad. He still can't remember anything that happened on Tuesday or Wednesday unless I mention something and then he will start to remember. I gave him a foot rub and rubed his back and he fell asleep. That made me feel better knowing I can do something to make him relax. I have to work tonight, but I know that his friend Max is going to be spending the night. His room was cleaned about 2p.m. and he was able to shower. I talked to him on the phone at night, and he had gotten sick. He still feels cruddy, but once again he's hanging in there.
Thursday, the 3rd day. Were continuing the mission. There was once again Busulfan every 6 hours. He was a little peppier when I got here today. When my mom and I got here we joined his mom, sisters, and aunt. After he got another dose of his medicine, he was out. Today his Hemoglobin and Hematocrit were low by one. His chloride and glucose were high today. Also his calcium was low by only by .3. Other then that his counts are looking great. He is sleeping still. He had some lunch at about 2p.m. He was seen by his psychatrist again today, and I heard it went really well. Child life also came in and gave Jake a nice pillow and a note pad. He still can't remember anything that happened on Tuesday or Wednesday unless I mention something and then he will start to remember. I gave him a foot rub and rubed his back and he fell asleep. That made me feel better knowing I can do something to make him relax. I have to work tonight, but I know that his friend Max is going to be spending the night. His room was cleaned about 2p.m. and he was able to shower. I talked to him on the phone at night, and he had gotten sick. He still feels cruddy, but once again he's hanging in there.
Day -7
Wednesday March 4, 2009
Today was the second day of Jake's transplant. Today was the first day of chemo. The chemo received today is called Busulfan. His first dose was at 6a.m. This will be given every 6 hours. Tuesday night his friend Max stayed with him and his mom came in the morning. A few of his friends also came up today. I joined them at 4 in the evening. He had a big dinner that was followed by a shower. When talking on the phone he said "today blows". He did not feel the best today and puked from the chemo. He had rested all day and trying to feel better. Today his white cell count was low and so were his Neutrophl. His chloride was high, but just by one. They kept him on the same drugs to prevent seizures and other pain. He does not remember a lot that went on today or Tuesday. A very special moment happened though at about 7. A little girl who just received a transplant was going to take a bath and Jake gave her two of his rubber duckies. It made her night and Jake was the most favorite patient on the unit. He struggles remembering what happened, but with my help I try to make his day better. He's hanging in there and staying strong. Even though he doesn't remember what day it is or who came to visit. He didn't sleep very well through Wednesday night to Thursday morning. He was up puking again. On to Thursday. Keep in thoughts and prayers, Jacob Lynch.
Today was the second day of Jake's transplant. Today was the first day of chemo. The chemo received today is called Busulfan. His first dose was at 6a.m. This will be given every 6 hours. Tuesday night his friend Max stayed with him and his mom came in the morning. A few of his friends also came up today. I joined them at 4 in the evening. He had a big dinner that was followed by a shower. When talking on the phone he said "today blows". He did not feel the best today and puked from the chemo. He had rested all day and trying to feel better. Today his white cell count was low and so were his Neutrophl. His chloride was high, but just by one. They kept him on the same drugs to prevent seizures and other pain. He does not remember a lot that went on today or Tuesday. A very special moment happened though at about 7. A little girl who just received a transplant was going to take a bath and Jake gave her two of his rubber duckies. It made her night and Jake was the most favorite patient on the unit. He struggles remembering what happened, but with my help I try to make his day better. He's hanging in there and staying strong. Even though he doesn't remember what day it is or who came to visit. He didn't sleep very well through Wednesday night to Thursday morning. He was up puking again. On to Thursday. Keep in thoughts and prayers, Jacob Lynch.
Transplant Day -8
Tuesday March 3, 2009
This is a blog for everyone to see what Jake is going through and his surrounding family, and also for him to know what happened day to day throughout his transplant. Today was the first day of Jacob's transplant. He is receiving a Stem-Cell Transplant. He will have 6 days of intense chemo and then one day of rest, and then the bone marrow that was stored will be inserted. On Wednesday he starts his first dose of chemo at 6am. Today he had a chest x-ray, blood draw, and his stitches were removed from his Hickman. He was visited by his doctor and his psychiatrist. During the day Megan was his RN and through the evening Erica was his RN. He was supported yesterday by me, his mom (Becky), and a few of his friends. Throughout the day he was put on IV fluids, heparin, and lorazepam. Today his Hemoglobin and Hematocrit were low by one. Everything else was perfect. He was given benadryl which put him out early around 7:30p.m. Knowing this is going to get worse before it gets better is going to be a tough ride, but we are all hanging in there for Jake. Jake and I could use your prayers as we go through this together.
This is a blog for everyone to see what Jake is going through and his surrounding family, and also for him to know what happened day to day throughout his transplant. Today was the first day of Jacob's transplant. He is receiving a Stem-Cell Transplant. He will have 6 days of intense chemo and then one day of rest, and then the bone marrow that was stored will be inserted. On Wednesday he starts his first dose of chemo at 6am. Today he had a chest x-ray, blood draw, and his stitches were removed from his Hickman. He was visited by his doctor and his psychiatrist. During the day Megan was his RN and through the evening Erica was his RN. He was supported yesterday by me, his mom (Becky), and a few of his friends. Throughout the day he was put on IV fluids, heparin, and lorazepam. Today his Hemoglobin and Hematocrit were low by one. Everything else was perfect. He was given benadryl which put him out early around 7:30p.m. Knowing this is going to get worse before it gets better is going to be a tough ride, but we are all hanging in there for Jake. Jake and I could use your prayers as we go through this together.
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